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DD advocates intensifying effort for KanCare “carve out”

Tom Laing, executive director of Interhab, speaking to parents of developmentally disabled children and advocates at a recent town-hall meeting in Overland Park.

Tom Laing, executive director of Interhab, speaking to parents of developmentally disabled children and advocates at a recent town-hall meeting in Overland Park. by Phil Cauthon

Push is again coming to shove in the struggle over whether the long-term care and support services received by Kansans with developmental disabilities will become part of KanCare or remain outside the control of the private companies hired by the state to manage the Medicaid program.

Advocates pushing for a permanent “carve out” of developmental disability services have circled May 8 on their calendars. That’s the day that the Kansas Legislature is scheduled to return to Topeka to wrap up its 2013 session.

“When you show up in numbers, it makes a difference in the legislative process,” said advocate Tom Laing, speaking last week to approximately 175 parents and advocates at a meeting sponsored by Johnson County Developmental Services.

“A lot of times when politicians do the wrong thing it’s because they haven’t heard from the folks who are the most impacted. If they don’t hear from you, we can’t succeed,” said Laing, executive director of Interhab, an association that represents most of the state's Community Developmental Disability Organizations.

Laing and other advocates said they are hoping that thousands of Kansans with developmental disabilities would turn out with their parents and guardians for a rally on the south steps of the Statehouse and to meet individually with legislators to make their case.

“I’m not a guy who believes in pitch forks and torches. We need to be persuasive, not abrasive,” Laing said.

'Carve in' date approaching

Medical services for the developmentally disabled already are part of KanCare, the reform initiative launched on Jan. 1 by Gov. Sam Brownback. It moved virtually all of the state’s 380,000 Medicaid beneficiaries into managed care plans run by three insurance companies: Amerigroup, United Healthcare and Sunflower State Health Plan, a subsidiary of Centene.

But yielding to pressure from advocates and service providers, the governor and legislators agreed last year to delay the inclusion of long-term, DD support services for a year — until Jan. 1, 2014. With the “carve in” date approaching, advocates are pressing their case again.

“We have to keep these services out of the hands of the profiteers,” said Bridget Murphy, director of the Downs Syndrome Guild of Greater Kansas City.

'Misinformation' fueling concerns

Murphy’s concern that the for-profit managed care companies will disrupt services now generally provided by a network of community-based, non-profit organizations is shared by many parents and advocates.

That frustrates Shawn Sullivan, the secretary of the Kansas Department of Aging and Disability Services, who has spent more than a year meeting with stakeholders to convince them they have nothing to fear from the new managed-care system.

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Bill would not allow quarantine of people with HIV, health officials say

Kansas State Epidemiologist Charlie Hunt.

Kansas State Epidemiologist Charlie Hunt. by Phil Cauthon

In response to news reports they said were based on a "false premise," state health officials today said they have no intention of quarantining people infected with or exposed to HIV.

“It is not and never was the state’s intent to seek the authority for isolation or quarantine of persons related to HIV,” said Charlie Hunt, epidemiologist at the Kansas Department of Health and Environment.

The Kansas Legislature has been advancing Substitute House Bill 2183, which would give KDHE authority to order certain health care workers to be tested for infectious diseases — such as HIV or tuberculosis — to prevent them being spread.

Workers covered by the bill include those who:

"provide medical or nursing services, clinical or forensic laboratory services, emergency medical services and firefighting, law enforcement and correctional services, or who provide any other service or are in any other employment where the individual may encounter occupational exposure to blood and other potentially infectious materials."

Existing law only authorizes KDHE to designate which diseases are infectious and to adopt regulations for the isolation and quarantine of persons exposed to the diseases to prevent their spread. The agency supports the bill, which currently is subject to negotiations in a House-Senate conference committee.

Hunt said some media outlets had mischaracterized the bill in their reports, causing public concern.

"Much of the recent media coverage has been based on the false premise that, if enacted, the bill would allow for isolation of persons infected with or quarantine of persons exposed to HIV,” he said.

That isn't legal under current law and the proposed new law wouldn't change that.

“The law requires isolation and quarantine be based on what is reasonable and medically necessary and neither of those thresholds are met with respect to HIV,” Hunt said.

Confusion over the bill was fanned when a TV station in Wichita earlier this week broadcast an interview with an AIDS activist who said he feared it might allow a health official to wrongfully quarantine an AIDS victim. A couple of national websites picked up on that story and then it spread rapidly via Twitter and Facebook.

Sen. Laura Kelly, a Topeka Democrat, was among those voting against the bill when the Senate passed it last week, 29-11.

She said many constituents had expressed concern to her over the bill.

"I think they have a right to be concerned," Kelly said.

She said she thought the concern stemmed from ambiguity in the bill, which she said had since been addressed in a conference committee meeting Wednesday.

"We inserted 'medically necessary and reasonable'," Kelly said. "That makes me a lot more comfortable."

She said she had discussed the changes with Hunt and a KDHE lawyer and that the new language settled her concerns with the bill.

"I asked them very specifically 'Is it ever medically necessary or reasonable to quarantine or isolate somebody with HIV/AIDS?' And they said 'No.'"

The conference committee is slated to meet sometime Monday to vote on the new language in the bill.

More coverage of health policy in Kansas.

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KanCare workforce shift hampering local agencies

Monica Anderson, right, a case manager with the Johnson County Area Agency on Aging, goes over some paperwork with client Patti Rogers. The two have worked together for seven years, and Rogers said she’s sorry she has to change case managers because of the overhaul of the Kansas Medicaid program.

Monica Anderson, right, a case manager with the Johnson County Area Agency on Aging, goes over some paperwork with client Patti Rogers. The two have worked together for seven years, and Rogers said she’s sorry she has to change case managers because of the overhaul of the Kansas Medicaid program. by Phil Cauthon

OLATHE — Workforce shortages prompted by the overhaul of the Kansas Medicaid program are hampering operations at some social service agencies in Johnson County and elsewhere in the state, according to executives at the organizations.

Human Services Director Debbie Collins said since September, her Johnson County agency had lost three of its nine case managers that assist frail elderly Medicaid clients through the Area Agency on Aging.

Collins said the workers all left for similar positions at UnitedHealthcare, one of the three insurance companies hired by the state as part of the new Medicaid program, which the state has dubbed KanCare. Virtually all the state’s 380,000 Medicaid recipients are scheduled transfer into the KanCare managed care plans effective Jan. 1.

The other two KanCare contractors are Amerigroup and Sunflower State Health Plan, a subsidiary of Centene. All three companies have been busy hiring workers for the past few months.

Collins and other agency administrators interviewed for this article said the bright side of losing the workers was knowing that the KanCare companies had hired qualified staff.

They said they didn’t blame their workers for taking the jobs because the employees told them they would get substantially higher pay at the managed care companies.

But the agency leaders said they weren’t sure how KanCare could save the state money, if the contractors will have significantly higher personnel costs.

“We are all befuddled about that,” Collins said.

Projected savings

Savings will come through a focus on patient education, preventive care, and by “ensuring members have access to the right care, at the right place and at the right time,” said Monica Stoneking, a spokeswoman for Sunflower State Health Plan.

Sunflower, she said, was paying “competitive wages in accordance with industry standards.”

Amerigroup spokesperson Maureen McDonnell declined to comment.

Alice Ferreira, a spokesperson for United Healthcare said the company was giving its new hires flexibility so that their former employers wouldn’t be left in the lurch.

“UnitedHealthcare has been working collaboratively with the agencies to provide case managers the work flexibility to ensure they are able to continue to work with the members as appropriate,” she said in an email. “We are committed to ensure members receive the care they need, and anticipate that this partnership will result in a smooth transition.”

She the company also was dedicated to “creating new jobs in Kansas.”

Officials at each of the KanCare contractors have said they would hire as many as 300 people as they prepare for the new program. Each company also has a Kansas headquarters office.

Changing roles

Officials in the administration of Gov. Sam Brownback estimate KanCare will save the state and federal governments $1 billion over the next five years.

Among the various social service and state agencies that have lost workers to the KanCare companies are the state’s Area Agencies on Aging, which, in any event, are seeing their roles change under KanCare.

Though the agencies are handing off case management for the frail elderly to the KanCare companies, they are expected to take on expanded roles in serving individuals with physical disabilities and traumatic brain injuries by assessing their needs for assistance and helping them choose the right KanCare plan, in the event the persons are not content with their state-assigned plans.

Collins said the changes have left her uncertain about what her staffing needs will be after the first of the year.

“We may very well have to expand,” she said. “We really don’t know what the workload will be.”

Lost connections

Other organizations experiencing KanCare-related personnel pinches include the Johnson County Mental Health Center and the Southeast Kansas Area Agency on Aging in Chanute.

Johnson County Mental Health has had 15 staff members take positions with the KanCare companies, according to agency officials, including a senior administrator and a number of clinicians and case managers.

In response, the center has pressed supervisors and everyone else with proper certification and training into service to coordinate care for clients, said Executive Director Maureen Womack.

The main problem, she said, was that clients had lost their connections to workers with whom they felt comfortable dealing.

“What is falling through the cracks,” she said, “is the therapeutic relationship.”

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